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Wednesday, June 5, 2013

What I cherish most

I came across a quote a few months ago on a blog I read, Mitchell's Journey, and it has always stuck with me- "Making the decision to have a child - it's momentous. It is to decide forever to have your heart walking around outside your body.”

 
It is amazing to me how innate and quick we as parents react and respond to our children. From the time our children are born, we know it is our job to protect them and keep them safe. But as they get older, we have to start to loosen our grasp so they can grow to be their own person. The first time I heard another child tell Michael they were not his friend anymore and leave him sitting by himself, crying, I wanted to jump up and hug Michael, telling him I loved him so much and that little boy was not a nice friend. But I refrained, I knew he needed to learn how to be his own little self and he would be okay. 
More than anything in life, I want my boys to grow up happy and loved. Our house is a very "huggie" house and I love it! We are very affectionate toward each other and I love to see that kind of affection in our boys. Everyday I cannot get the boys out of their classrooms until they have hugged both of their teachers and all of their friends. Michael and James still hold that innocence in their hearts that I never want to see fade away. They do not know yet what it means to be picked on or bullied. They don't understand name calling and exclusion. If I had it my way, they would never be hurt or disappointed, but honestly, that is life. The only thing Geoff and I can do is teach them how to walk away when conflict arises and how to forgive when forgiveness is asked. We have to show them what it looks like to be a friend and how important it is to hold their friends close to their hearts. 

To me, the best measure of a friend is to see how they love your kids. Geoff and I are very blessed to have amazing people in our lives who love our boys as if they were their own. There is nothing more rewarding than seeing your little ones loved on by your friends. Afterall, Michael and James are the best parts of Geoff and I rolled up into two little wild and crazy boys! They love their friends, they love Spiderman and they love their mommy and daddy! I wouldn't have it any other way:)  


Friday, May 24, 2013

The Little Engine that Could


I remember hearing this story when I was a little girl and cheering for that little engine to keep going, that he was so close and to not give up. I was so excited for him when he made it to the top of that mountain and felt a sense of relief and accomplishment along with him as he made his decent down the hill knowing that he had conquered something hard and never gave up.

I think this little engine is in each one of us, but we have to choose to listen to his chant of encouragement and decide which mountains we have to climb.

As I have said in my last post, this year has been tough on my family. After Geoff read my last post, he looked at me and said, "You didn't mention everything about James." I decided I could only handle little chunks at a time when putting my thoughts out there, sharing scary things that have been going on in our lives with our loved ones. Thankfully, everyone in our family is healthy, for the moment, however we still have our "climbs" as we all have to experience in life.

Unfortunately, James's "climb" is one we have been chugging on for a little over a year now. Long, long story short, James was sick ALL the time from about 3 months until age 1. We were in the pediatricians office at least once a week, no exaggeration! James always had a runny nose that would turn into an ear infection followed by Strep Throat. So, we go to the ENT, because of course we have one from Michael, and he recommends tubes...done! So easy, we've done that before with Michael, no big deal. Then the Strep continues and coughs, sinus infections, etc. I finally decided enough is enough- it is not NORMAL for your baby to be sick this often and our Pediatrician, who I did love, was obviously too busy to take notice or take me seriously. Luckily, a very good friend of mine recommended her Pediatrician and we made the switch. Hands down best decision we have ever made for our boys. Dr O is amazing and attentive and calls me on my phone to talk about the boys and follow up! Anyway, we move doctors, she wants to give him a month to check him out, see whats going on and then orders lab work because she agreed it was not "normal" to be sick this often. Dr O definitely did not see James's results coming when they indicated he has immunodifficency! James is a TANK! He is a big boy and a big eater and immunodeficient kids are not "usually" big babies. But that is what his lab work showed so at least we had a reason for his illnesses.

The afternoon, last April, when Dr O called me was life changing. My little engine derailed briefly as she told me what his lab results showed and told me I needed to get James to an Immunologist asap. Luckily, Geoff is amazingly calm in situations like these and helped me get "back on track", pull it together and figure out what we needed to do for James. We made an appointment with an Immunologist for James, started treatment (antibiotic everyday) and had to get more bloodwork- which is the most horrificly, awful, horrible thing in the world:( I of course ended up switching Immunologists, I just didn't have a great feel from the him, and are with an Immunologist who is very black and white, no nonsense and straight-on. This is what we needed.

This Immunologist believed James had an "immature" immune system and he was very hopeful that he would grow out of this by the age of 2. However, we needed to take James back to his ENT and have his tonsils and adenoids removed. By the age of 16 months, James had tubes placed, adenoids removed and then tonsils and adenoids removed (adenoids grow back, did you know that?)

That brings us up to James' 2nd birthday. We went in for lab work, we were so confident he was going to be great! James had not been sick since his tonsils and adenoids were removed! He was great! Then, his Immunologist sends us the results....his levels DROPPED lower than his initial numbers:( He is not absorbing his vaccinations and will need to get boosters for his past vaccinations in addition to new ones. Kick to the gut and thrown off track again. BUT, the positive is he has not been sick and the antibiotic is doing its job.
 

Four weeks after his boosters, we went in for MORE blookwork and to see how his body was responding to his recent vaccinations...results:
"The response to vaccine was vigorous which is very encouraging. The abnormal values in the CBC suggest that allergy will be important but there are no other problems with the CBC and clotting cells are normal. The bruising is a function of age, not a medical problem."
 

We could not have asked for better news. Geoff and I will take James to see his doctor on Tuesday to discuss his results and where we go from here.

So, we will just keep chugging along......


Tuesday, May 7, 2013

Trying to stay afloat

Blogging has always been my go to for stress relief and ability to escape into priceless memories that I never want to forget. Reliving trips to the beach, Birthday Parties and Holidays are my "icing on the cake" if you will. Unfortunately, not everything can be sunshine, rainbows and unicorns. Lets face it, life is hard and bad things happen. It is through these hard times that we come out on the other end stronger, better people. I have gone back and forth as to if I should write about what has gone on with our family over the past few months, but then I decided it was an experience our family went through, together, and is something we will never forget nor do I want to forget because it has made me the stronger person I am today.

We ended and began our year with my mom becoming very ill after Christmas while visiting my brother and his family in Alabama. There is nothing more life altering than receiving a phone call, right after walking in from a 12 hour car ride home from Atlanta, that your mom is very sick and the doctors do not know if she will make it. What!?!? I had just talked to her less than 24 hours before! Time stood still. Numbness came in and all I could do was look at Geoff for direction. Thank goodness Geoff deals well in stressful situations because I sure as hell do not! A plane ride later we arrived to Mobile and I walked in to ICU where a woman laid, hooked up to machines that were breathing for her and giving her medicine. That person in the bed was not my mom, all I kept thinking to myself was that this was all a dream and I did not understand why I could not wake up. I went to her bedside and held her hand, told her I loved her and that we were all there. I begged her to wake up and to hold on, that it was not her time and she had so much more living to do. I told her about James's new dance moves and Michael's recent belt he received in karate. I told her she would have been so proud and that the boys needed their Annie.

It was not her time. We were not ready. That was the most heart-wrenchingly painful time of my life and I kept looking from my sister to my Dad to my brother wondering what we were going to do if she did not come back to us.
Sepsis is a nasty, nasty thing. It invades every part of your being. That night, the doctors told us there was nothing more they could do and that it was in God's hands.
Well, as many of you know, my Mom is a stubborn, hard headed woman and she was not going down without a fight. She came back to us and boy was she very much alive! She had a long road ahead of her and she would have to continue with her spunk to get out of there, but she did it. After a month and a heart double bypass later, my Dad drove our Annie back to Dallas and we were all so happy to have her home.


And if this wasn't enough panic and heartache for a lifetime, let alone a year, Michael started to have strong, horrific abdominal pains that began to increase in frequency and duration. Geoff and I paid close attention and tried to alter his diet and increase fluids, thinking that might have something to do with his "episodes". We consulted with his pediatrician and his GI doctor, searching for answers to help our little boy. We went to Children's ER countless times, with each visit ending in more frustration and confusion. The biggest problem was Michael's pain would come and go and of course, buy the time we got to the ER, the pain was gone, and the nurses and doctors looked at us like we were crazy. The first time Michael was admitted, the doctors believed he was severely constipated and discovered he had a cyst on his umbilical cord, or where it had once been. We were assured this was not the cause for pain and told us to follow up with the surgeon after our stay at the hospital. Michael had to have a NG tube to give him the medicine needed to "clear him out" and restore his digestive tract. After 4 days, Michael was released and we thought our little boy was "fixed".

Unfortunately, this was not the case and the pain continued for 4 days until finally his GI doctor ordered us to go immediately to the hospital for she was witness to his painful episodes that were now lasting almost 20 minutes. These were the most heartbreaking things to watch. Michael would hunch in a ball and scream and cry and beg for the pain to stop. He would look to Geoff and I for help and we were just devastated that we could offer no relief. It was the most helpless feeling in the world to know your child is in pain and there was absolutely nothing you could do to help him. I would try to hold him while he launched his little body back and forth, begging for the pain to stop. The doctors still did not believe this cyst could be the culprit for the problem, however, the surgeon finally agreed to do surgery to remove the cyst and see if there was anything else going on that they could not see.
I would never wish anything on my children, however, we prayed and prayed that they would find an answer to what was causing Michael all of this pain. After 2 hours in surgery, Geoff and I were called into a room to discuss the results. The doctor had 2 8x10 pictures showing Michael had what is called a Meckel's diverticulum along with an infected cyst and that his small intestines, bladder and arteries were all connected to it, thus causing all of his pain. The doctor removed the diverticulum and cyst, stapled off his organs, and, Michael ENT came in and reinserted tubes, and took out his tonsils and adenoids as well since he had been experiencing recurrent strep and had moderate hearing loss due to fluid in his ears. Needless to say, our little boy had been put through the ringer, literally, and we were all looking forward to the day he would no longer be in pain. Michael stayed in the hospital for 7 days and was such a brave little boy. He has gone through more than most people experience in a lifetime and he is still such a happy, active, affectionate little boy.

Geoff and I count our blessings everyday and know how important it is to be an advocate for our kids. They might be too little for their voice to be heard but their Mama sure as heck will be sure they are heard. I have always trusted my instincts when it comes to the boys and that is solidified now more than ever.


I was given a new perspective on my life and realized my priorities were not where they needed be. More than anything, now I laugh harder, live fuller and love stronger. My family is my world and Geoff and I count our blessings every night.We do not take anything for granted and we try to breathe in every giggle, every cuddle and every grin because we know how unpredictable life can be. 
 
 

Friday, February 15, 2013

Sweets & Treats

With all of the craziness that has been going on over the past 6 weeks, I decided I wanted to have a Sweets & Treats party for Michael and some of his sweet friends and their Mamas. I have honestly been planning this party since Christmas so I was excited when everything started coming together.
I had strawberry milk, cream cheese & strawberry jelly heart-shaped sandwiches, fruit and Valentine Snack Mix for the kids & champagne with Strawberry garnish, curry tuna salad pita sandwiches & strawberry cucumber water for the Mamas.
I also had a few crafts for the kids to keep them entertained. There was a robot valentine cut-out for the boys and a hippo cut-out for the girls, a heart shaped door hanger, cookie decorating with Geoff's homemade raspberry buttercream frosting, and of course, a hand/ foot print craft with paint on canvas.
 
(Note Cupid James in the window....LOL...Thanks Tara for the pic!)
 
 

 
We had such a great time with amazing Mommies and their babies! Thank you for everyone for coming!
 
On actual Valentines Day, I had to dress the boys in matching shirts, of course, that said, "Sorry girls...Mommy says NO dating"...no words...no words:) I love my boys so, so much and I love how much they love each other! Nothing melts my heart more than seeing Michael put his arm around his little brother----so, so sweet!!!
Geoff and I celebrated our Valentines Dinner on Friday, the 15th, and it was so nice to sit down and catch up. Life seems to be passing by us so fast lately....it is nice to slow it down every now and then!

 



Kate <3 p="">

Friday, February 1, 2013

Christmas with the Boutons

I know, its February 1st and I am just now writing about Christmas, but it has been a crazy 5 weeks! All of that is another store entirely... for now...here is Christmas 2012...
(James, Kacie, Hannah Blanche, Michael & Presley watching Polar Express)

Twas' the Friday before Christmas
and all through the house
Not a creature was stirring,
not even a mouse....

Why you might ask, well, Geoff, myself and the boys were all loaded up in the Swagga-Wagon, heading to Dunwoody, GA to spend a week with the Bouton/ Hatch Family for Christmas!

We pulled out of Frisco around 7:00 pm, after dinner, giving the boys a bath and putting them in their pj's. The car was FULL with not only our luggage and family of 4, but also Christmas presents, I tried ordering online ahead of time, but you know how that goes, a cooler full of every snack you could think of and juice, water, milk and an assortment of DVDs in-case the boys tired of Elmo and Mickey,

The trip was actually uneventful- Michael fell asleep first, then James, around 9:30 and they did not wake up until around 1:00 am, did not go back to sleep until 3:00, when we had to stop for gas and Geoff and I switched driving- I took over until we pulled into Atlanta around 7:00 am and arrived at the Bouton House just as they were waking up!
(James loving the piano)

We had a great time, except for Michaels double ear infection, again, and strep, of course, but he never complained:) He was so excited to see his cousins and play with the big girls! They also loved playing with their cousin Wyatt. I have a feeling Michael, James and Wyatt will be up to NO GOOD in the years to come... James loved taking center stage and showing off his dancing skills :) Boo-Boos got some moves! He must get them from his Mama:)
(Wyatt & James "organizing" Aunt Merrie's cabinets, they did this A LOT!)

We alternated having dinner at Merrie & Owen's House and Steve & Lorraine's House. I absolutely love our Family and hate that we live so far away:( Fortunately, we have the tradition of switching off holidays and we see each other every summer on our Beach Trip, thank you Nana and Pops! Family is so important to me and I am so happy the boys are able to make these special memories with their cousins, like I did with mine.

While we were in Atlanta, Geoff and I were able to go spend the day with my cousin Ellen and her family. They used to live just a few miles from us in Plano, but her husband had a job change and they moved to Atlanta:( It was SOOOO great to see them! Michael has missed his BFF Christian and they played so well together! Little Miss Lainey is absolutely adorable! Its crazy to me how fast everyone is growing up....time really needs to slow down!

Leaving the following Friday night was sad, however, we knew we would see everyone in 6 months at the beach, so it gives us all something to look forward to!
 (Presley, Michael & HB Making "Reindeer Food")





 (Kacie, James, Michael & HB)
 (HB, Presley & Wyatt)

 (I think this one is my favorite! I love HB's face:)
 (Christmas PJs)
 (Sweet Wyatt & Presley)
 (Toasting Marshmellows)
 (Sprinkling Reindeer Food)

 (Craziness!!!)
 (Christmas Morning Bagel)
 (Michael & Wyatt)
 (James' BFF Elmo)

 (Captain Michael)
 (Lainey & James)

 (Christian, Lainey, Michael & James)